Tag: AIDS

CDC: 27% of Trans women are HIV+

On December 9, 2013 the Center for Disease Control released a report entitled HIV Among Transgender People.

Two days ago Leela Ginelle, communications and development intern for TransActive Education and Advocacy wrote an Op-Ed at the Advocate:  Why the CDC’s Latest HIV Report Is So Alarming.

The CDC report says an estimated 27% of transgender women are HIV positive, which is nearly 50 times as high as the rate for other adults.  A New York City study found that more than 90% of newly diagnosed transwomen are African-American or Latina, and more than half are in their 20s.

Ginelle asks the question, “Why?”

On Not Doing 9/11, Or, Right Now, I’ve Got A Desk To Clear

I’m going to be really honest with you: after all the fights at the mall to get just the right present for everybody and the giant hassle of going to the Post Office so I can get the perfect stamps for my cards – and then worrying that I left someone off the list – I am just not in the mood to do a 9/11 story.

And it’s been getting worse every year. I mean, just like the “It’s Christmas Every Day Store”, I know there’s one of the “9/11 Every Day” stores open, in the all-too-human form of Rudy Giuliani, and I’ve learned to live with that, but it seems like they got started with the 9/11 earlier than ever this year – and by the time the TV memorials and analysis and retrospectives are all over, to paraphrase Lewis Black…I’m going to hate freedom.

In an effort to stave off this fate, we’ll be headed in a different direction today: I have three stories to pass along; each is important enough that you really should know about them, and yet they’re each very much bite-sized and easily digestible.

It’s all good stuff…so let’s get right to it.

In Memoriam: Elizabeth Taylor

Elizabeth Taylor was not only a great actress and beautiful woman but an activist and a humanitarian. It was through her actions and advocacy that we have come so far with combating the spread of HIV and finding a prevention. We still have a long way to go. She will be greatly missed.

Sir Elton John sang “Don’t Let the Sun Go Down on Me” in a tribute to his friend.

Please donate to amfAR in her memory.

You’ll Love This- WH Sides With Big Pharma vs. Clinics on Prices

There are over 15,000 clinics and hospitals in this country, which get their drugs for poorer patients from a government discount – drug act which was created in 1992.   They spend over $6 billion, and they are supposed to get a discount of 30% to 50% off.

During the past 8 years, (that’s mostly during the Bush administration 2002 – , with some overlap into the 3rd Term of Bipartisanbamaship ) the inspector general for HHS noticed drug manufacturers were overcharging their customers, but not getting dinged for it and being motivated to be good contractors.


Ted Slafsky, executive director of Safety Net Hospitals for Pharmaceutical Access — which represents 600 hospitals in the program — said that “manufacturers have been able to overcharge covered entities with impunity.”

http://www.californiahealthlin…

Santa Clara County and Santa Cruz County in California sued Astra Zeneca USA.   This upset Big Pharma.

In Dec 2009, the Ninth Circuit Court of Appeals of San Francisco ruled that clinics and hospitals could sue.

The Supreme Court is asked to rule next.

The U.S. Department of Justice, Eric Holder, Attorney General, under the Presidency of Barack Obama, is now siding with the Pharmaceutical companies to overturn that decision, and telling the Supreme Court they don’t want counties and clinics suing over drug price rip offs.   Per the DOJ, only the Federal Government (not meaning Congress, I guess, but the secret deal maker- in – chief) had the authority to enforce the law.

Friday Philosophy: Transwomen and AIDS



Helena Bushong was diagnosed with AIDS in 2002.  She probably had been HIV+ since 1985.  She also has Hepatitis C and is a survivor of spinal cancer.

But she has one hell of a strong backbone.

This past week she was interviewed about being transgender, black and poz.  Do yourself a favor and go see what she has to say for herself.  The video is not embeddable.

I felt comfortable in my own skin for the first time in my 56 years.

–Helena Bushong, about going on homone therapy

But y’all come back, y’hear!

And there is more…

Sending love and wishes to Zelda Rubinstein, actress and activist

Most of you know who Zelda Rubinstein is, even if you don’t know her by name.  The 4′ 3″ actress made a huge mark in popular culture when she starred as the mysterious Tangina Barrons in the Poltergeist series, delivering one of the film’s most memorable lines – “Step into the light, Carol Anne!” – and winning a Saturn Award for Best Supporting Actress to boot.

Many of us (myself included) might not realize that Rubinstein was also an activist, among the first celebrity faces of the safe sex campaign to stop the spread of HIV/AIDS – doing so all the way back in 1984, at great personal and professional risk.

Today radaronline is reporting that Rubinstein was taken off life support.  I’d like to send best wishes to her and her family, along with warm thanks for all that she’s done.

This Year’s Top Ten

This is not the Top Ten you might think. These are the Top Ten Humanitarian Crises from around the world that are selected by Doctors Without Borders at the end of each year.

  Aid Blocked and Diseases Neglected

New York, December 21, 2009 – Civilians attacked, bombed, and cut off from aid in Pakistan, Somalia, Yemen, Sri Lanka, Afghanistan, and the Democratic Republic of Congo (DRC), along with stagnant funding for treating HIV/AIDS and ongoing neglect of other diseases, were among the worst emergencies in 2009, the international medical humanitarian organization Doctors Without Borders/Médecins Sans Frontières (MSF) reported today in its annual list of the “Top Ten” humanitarian crises.

Continuing crises in north and south Sudan, along with the failure of the international community to finally combat childhood malnutrition were also included on this year’s list.  The list is drawn from MSF’s operational activities in close to 70 countries, where the organization’s medical teams witnessed some of the worst humanitarian conditions.

THIS is GOOD! FREEDOM or FEAR!

From Freedom or Fear!  I had planned a different post entirely, but I received this and I think it is quite good!  I think you’ll agree!  

I think you’ll have to agree that this is very well put together!  Music is good, too!

(P.S.  I still plan on doing the one I had in mind!)

Capitalism Just Can’t Stop Showing Its Ass These Days

I hadn’t been to an AIDS demonstration so far this year (my bad) but the prerecorded announcement from the ACT-UP phone tree Wednesday night haunted my sleep and got me out of bed and headed for midtown Thursday morning. The demo here in NYC was part of an international week of actions (including Arizona, Thailand, France, Switzerland and more) targeting pharmaceutical giant Roche. The demand was simple: Roche must negotiate with the South Korean government to lower prices on bulk orders of lifesaving AIDS drug Fuzeon for its national healthcare system.

What got me going was hearing the quote from Urs Fluekiger, marketing director for Roche Korea, who explained the company’s refusal to budge on their $22,000 price tag for one patient/year of this vital medication:

We do not do business for saving lives but for making money. Saving lives is none of our business.

ACT-UP Roche demo 1

I thought to myself, okay, that tears it. It’s getting harder and harder to find anyone saying a kind word about good old freemarket capitalism, what with the mounting wreckage that is the global economy these days and the hurt that will be put on everyday working people here in the US and around the world in order to rescue the bloodsuckers who have benefited from this system.

There’s every reason we should make a point of kicking ’em while they’re down.

So I did my little bit yesterday, leafleting at a characteristically lively and imaginative action by ACT-UP’s New York and Philly locals and other AIDS groups. Scores of people grabbed fliers as they rushed to work in the skyscraper housing LifeBrands, Inc., the ad agency that Roche employs to promote Fuzeon.

There’s plenty more detail to deepen your rage at Roche–how they bought out the company that was given the rights to this drug by the governmen (which sponsored the original research), how their executives have shut down all AIDS and HIV research, how their profits last year exceeded 30%. But that one quote tells the story, about Roche and about the whole system they have made themselves such a success in.

We do not do business for saving lives but for making money. Saving lives is none of our business.

ACT-UP Roche demo 2

(photos: Kaytee Riek)

Crossposted from Fire on the Mountain, where there are other photos of the demo.

Pony Party, Prevention is Power

We’re all probably aware that February is African-American History Month, but did you know that February 7, 2008, yes, today, is National Black HIV/AIDS

Awareness Day 2008

You can see this year’s PSA on the website (link below), but only 2007’s was available on youtube:

Friday Night at 8: December 1

December 1 is my birthday.  It is the day of my mother’s funeral, back in 1992.  The day that Brown v. Board of education ended segregation in our nation’s school

It is also World AIDS day.

I moved to New York City in September of 1981.  My best friend and soulmate, Jeff, lived there and I was going to stay with him and his lover until I got my own apartment.

My first job was at a lawfirm, I remember a gay friend and co-worker telling me about the “gay cancer.”  I quickly forgot about it, knowing Tom was a terrible hypochondriac.

Jeff was a renaissance man in many ways.  He was always active, never idle.  He painted, worked hard as a photo retoucher, danced beautifully and went out constantly to the bars to party till the break of dawn.  His cooking was legendary.  His sense of humor was what bonded us the most — I loved to make him laugh.  He had no tact and often got in trouble with folks because of that, but would usually win them back by having them over for dinner.

His sexual exploits were also legendary and I was his confidante for many stories.

His temper was terrible as well and we often fought, though we always made up.

When I had my mental problems back in the late 70’s, Jeff would call my mother to comfort her (I only found this out several years later).  He wrote me a little picture book to cheer me up, a humerous biography with hand-made pop-out drawings of my plight.  I still have that book.

All block quotes are from And the Band Played On, by Randy Shilts (1987):

By October 2, 1985, the morning Rock Hudson died, the word was familiar to almost every household in the Western World.

AIDS

Acquired Immune Deficiency Syndrome had seemed a comfortably distant threat to most of those who had heard of it before, the misfortune of people who fit into rather distinct classes of outcasts and social pariahs.  But suddenly, in the summer of 1985, when a movie star was diagnosed with the disease and the newspapers couldn’t stop talking about it, the AIDS epidemic became palpable and the threat loomed everywhere.

Suddenly there were children with AIDS who wanted to go to school, laborers with AIDS who wanted to work, and researchers who wanted funding, and there was a threat to the nation’s public health that could no longer be ignored.  Most significantly, there were the first glimmers of awareness that the future would always contain this strange new word.  AIDS would become a part of American culture and indelibly change the course of our lives.

The implications would not be fleshed out for another few years, but on that October day in 1985 the first awareness existed just the same.  Rock Hudson riveted America’s attention upon this deadly new threat for the first time, and his diagnosis became a demarcation that would separate the history of America before AIDS from the history that came after.